Batter Living with PNH

Your Path and Live Your Life With PNH

From the first symptoms to the diagnosis of your PNH you have lived through some tough experiences! Today you get a fresh start in life thanks to the beneficial effects of your treatment.

Perhaps you’ve been living with PNH for some time and you feel the need to improve your quality of life. But your life journey living with PNH may be riddled with challenges and concerns.

Explore Audrey’s Story

Listen to Audrey Lagacé, a twenty-four-year-old nurse at the Charles-Lemoyne Hospital of Montreal. She’s been living with PNH for over ten years.
Computer with Better Living with PNH on screen

A comprehensive guide

with a holistic approach to better
living with PNH. Find the most useful information and tools for you!

Every two weeks for ten weeks,
receive information packages and free practical tools :

Up-to date information on what you need to know about PNH

Practice guides on fitness, nutrition, yoga and meditation

Experts on video featuring:

Natalie Lambert Headshot

Fitness Coach

Nathalie Lambert

Former Canadian
Olympic medalist in
short-track speed skating

Vanessa Perrone headshot

Nutrition Coach

Vanessa Perrone

Dietitian and

B Reisman Headshot

Yoga Coach

Barrie Risman

recognized yoga

Batter Living with PNH

Register Now!


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Please allow 2 weeks to receive your 1st tool kit and don’t forget to check your promo-spam inbox!


The content provided within Better Living With PNH, Day by Day is intended as supplemental material for informational and educational purposes and should not be taken as professional advice. We strongly recommend that you consult with your medical professionals before starting any fitness, nutrition, or yoga activities. The content of this program has been provided by PNHCA without any input from our sponsors. Copyright PNH Canadian Association of PNH Patients..

Brought to you by

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Special thanks to Professor Peter Hillmen, Hematologist, PNH Expert, Leeds, UK and to Dr. Christopher Patriquin, MD MSc FRCPC, Hematologist and PNH expert at the Toronto General Hospital, University Health Network, in Toronto, Canada. And with the support of unrestricted educational grants from:
Bio Cryst
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